Graci and I wrote a short children's book about her journey to her new ear. This book tells of a little girl name Graci born with just one ear. This book tells of her and her families journey as they earn the money to travel to a plastic surgeon that will reconstruct Graci an ear.
Books can be purchased at Amazon and all proceeds go to Graci's Medical Fund. Book are $10.00 or a donation to Graci's Medical Fund, PO Box 2322 Wilson, NC 27896
About Me
- Mary Brown
- I am a mother of a beautiful daughter with Hemifacial Microsomia. Graci has changed my life forever. I am so thankful for every day God gives me with her. I believe God created her the way he wanted her to be; and placed her in my life for a reason. I pray that he gives me strength and guidance I need to raise her to be a beautiful lady. Graci was born with mulitple birth defects. She has already undergone several surgeries and now we have reached the point in her life where she will have ear reconstuction on her microtia. This blog is for family, friends and others to read as we go through this amazing journey in California as Graci gets her new ear.
Friday, May 13, 2011
Friday, February 25, 2011
Evaluation wtih Cranofacial Center at UNC
As mentioned before, the journey doesn't end here. Graci had her yearly evaluation with the Craniofacial Center at UNC on January 18, 2011 and they gave us recommendations of all the specialist with whom we met during the visit. It's always a long day for us but it's so good to be at UNC Children's Hospital around so many dedicated and brilliant individuals. Also, we are able to see other families with children similar to Graci and it reminds us that we aren't alone in this journey.
Graci was seen by the speech therapist who stated that Graci's language skills are age appropriate. She reported having mild hypernasality and inconsistent audible nasal air emission. The recommended that we encourage her to use correct pronunciation of sounds that are difficult for her during everyday speech. Thankfully, Graci passed her hearing screening in her good ear. Hopefully, the tube will stay in place for at least a year to keep her from having ear infections and causing her to have any mild hearing loss. Graci's ENT doctor discussed a possible bone anchored hearing aid (BAHA). We have discussed this with Graci but at this time we are so undecided. Graci of course doesn't want anyone to see the hearing aid; but, i want her to expereince the feeling of hearing out of both sides of her ears. We are unsure if Graci is a candidate for the ear canal reconstruction surgery and have many mixed feelings about it. I have to do more research on this surgery and this is something that will be discussed with Graci. At this point she is ok with not having a hole in her ear and she it doesn't bother her that she can't hear out of it.
The plastic surgeon stated Graci's ear reconstruction looked good and we discussed timing of the corrective jaw surgery. He stated she had a right cleft nasal deformity with slumping of the right lower cartilage. Her palate appeared to be intact. We aren't concerned with her nose and will decide on nose revision when Graci is ready. Graci will need TMJ reconstruction with a rib graft but will depend on the oral surgeons report. After speaking with the oral and maxillofacial surgeon we concluded that Graci has a large alveolar cleft on the right for which she will require bone graft reconsturction. Therefore, we need to make an appointment with Dr. Miller Gibbons (orthodonist) in Wilson who we feel comfortable with her going too. He will begin Phase I orthodontic maxillary incisors to plan timing for the bone graft.
Graci was seen by the speech therapist who stated that Graci's language skills are age appropriate. She reported having mild hypernasality and inconsistent audible nasal air emission. The recommended that we encourage her to use correct pronunciation of sounds that are difficult for her during everyday speech. Thankfully, Graci passed her hearing screening in her good ear. Hopefully, the tube will stay in place for at least a year to keep her from having ear infections and causing her to have any mild hearing loss. Graci's ENT doctor discussed a possible bone anchored hearing aid (BAHA). We have discussed this with Graci but at this time we are so undecided. Graci of course doesn't want anyone to see the hearing aid; but, i want her to expereince the feeling of hearing out of both sides of her ears. We are unsure if Graci is a candidate for the ear canal reconstruction surgery and have many mixed feelings about it. I have to do more research on this surgery and this is something that will be discussed with Graci. At this point she is ok with not having a hole in her ear and she it doesn't bother her that she can't hear out of it.
The plastic surgeon stated Graci's ear reconstruction looked good and we discussed timing of the corrective jaw surgery. He stated she had a right cleft nasal deformity with slumping of the right lower cartilage. Her palate appeared to be intact. We aren't concerned with her nose and will decide on nose revision when Graci is ready. Graci will need TMJ reconstruction with a rib graft but will depend on the oral surgeons report. After speaking with the oral and maxillofacial surgeon we concluded that Graci has a large alveolar cleft on the right for which she will require bone graft reconsturction. Therefore, we need to make an appointment with Dr. Miller Gibbons (orthodonist) in Wilson who we feel comfortable with her going too. He will begin Phase I orthodontic maxillary incisors to plan timing for the bone graft.
Tuesday, February 15, 2011
The Brown Family...Our TOP 10 moments of 2010
10. visits from the tooth fairy for graci
9. 2nd year of baseball for griffin
8. tap, jazz and piano lessons for gaci
7. new preschool for griffin
6. lst golf tournament for graci and giffin
5. perfect report card for graci
4. lst time on a horse for graci and griffin
3. daddy's work in in our state magazine
2. mommy gets a new job
1. NEW EAR FOR GRACI
9. 2nd year of baseball for griffin
8. tap, jazz and piano lessons for gaci
7. new preschool for griffin
6. lst golf tournament for graci and giffin
5. perfect report card for graci
4. lst time on a horse for graci and griffin
3. daddy's work in in our state magazine
2. mommy gets a new job
1. NEW EAR FOR GRACI
Monday, August 16, 2010
Busy 2 Weeks!
Well, Graci did pretty good after surgery. Of course, we were able to do alot of things as a family and enjoyed being together. It's so nice to get away from all the worries at home, work, bills, family and just the hustle and bustle of every day life in Wilson. When we go to California, everything and everyone changes. It's life a new world for us, with new people, new surroundings and we have a new meaning on life. California is where it all began for us and when we left there were tears. It was sad knowing that we probably wouldn't ever return to California. It was truly the best place we had ever been for so many reasons. It was a happy place for me a place that liberates my energy and inspired my hopes and dreams. Dreams of a little girl getting a gift that she so well deserved.
While we were there we went to the Happy Hallow Zoo, San Fransico 49'ers Family Day, San Francisco Giants Baseball Game, Sightseeing Tour downtown San Francisco and lots of shopping in several of the cities malls. We were able to once again experience things that some people never will. It was so amazing watching animals, foot ball, baseball, seeing the city life from a tour bus with a tour guide and just spending time with each other.
It was kind of hard saying good bye to Dr. Brent. Graci drew him a picture of her famous tide dye pinwheels framed. We couldn't have thanked him enough for what he had done for our child. It was truly a blessing having been one of his patients and all the time, energy and money that was put into these four trips was totally worth it.
To Dr. Brent: We want to thank you so much for your warmth, kindness, support, expertise and for making us feel 100% comfortable in every way. You are such a sweet, gentle and fabulous person and we couldn't be more thankful for you and what you have done for Graci. This surgery has made an impact on her self esteem and we thank you from the bottom of our hearts.
While we were there we went to the Happy Hallow Zoo, San Fransico 49'ers Family Day, San Francisco Giants Baseball Game, Sightseeing Tour downtown San Francisco and lots of shopping in several of the cities malls. We were able to once again experience things that some people never will. It was so amazing watching animals, foot ball, baseball, seeing the city life from a tour bus with a tour guide and just spending time with each other.
It was kind of hard saying good bye to Dr. Brent. Graci drew him a picture of her famous tide dye pinwheels framed. We couldn't have thanked him enough for what he had done for our child. It was truly a blessing having been one of his patients and all the time, energy and money that was put into these four trips was totally worth it.
To Dr. Brent: We want to thank you so much for your warmth, kindness, support, expertise and for making us feel 100% comfortable in every way. You are such a sweet, gentle and fabulous person and we couldn't be more thankful for you and what you have done for Graci. This surgery has made an impact on her self esteem and we thank you from the bottom of our hearts.
Saturday, August 14, 2010
4th stage Ear Reconstruction!
Once again we woke up bright and early and headed to the El Camino Surgical Center. Graci was very happy and eager to get this behind her. Graci was going in for 4th stage ear reconstruction. During the 4th stage they do tragus construction with full thicknes and ear cartilage graft. Dr. Brent will create an opening in the conchae (to give the appearance of a natural ear canal) and works to achieve symmetry and balance among the contours of the ear.
Suddenly, our name was called and we went back together as a family. We were all dressed in seersucker since Graci asked us to look cute. It was so nice to see the wonderful nursing staff again. They have been so great to work with and there are so many things that we are going to miss and the hospital and staff is one of them. It really saddens my heart to know that this would be our last trip to California and our last time seeing the most amazing staff and surgeon that gave Graci and an ear. We had lots of down time in the pre-op room which gave a lot of time for tears. Graci probably cried more this time than any other surgery. She held on to her Daddy several times and I would often look over there and see him holding her. Meanwhile, I was keeping Griffin occupied with his cute self, wearing his seer sucker pants and Guy Harvey shirt to the hospital. Graci picked it out for him. He was playing with a puppet that the nursing staff gave him and singing "Big Green Tractor" to it. There was a sweet moment when he went over to Graci's hospital bed and held her hand and bent over and kissed it. As usual, they gave Graci her liquid Valium and sent her back to the operating room. We sat in the waiting room with movies, ipods, phones, magazines, coffee and doughnuts and each other. It was just such a moment of relief that soon this journey would be behind us and Graci would have her "New Ear."
Well, Dr. Brent came out and said that Graci did great!! He showed us a picture of ear and i just dropped to my knees. It was such a wonderufl feeling and he had pierced her ears. It was so emotional for Thomas and I. It really is hard to describe the feeling that we felt. One, it was hard knowing that a 7 year old had to go through all this in just one year. I want to end this writing with a moment that I will never forget. The day Graci was born we had prepared ourselves that we would soon be parents of a beautiful daughter with cleft lip and palate, but not microtia. Of course, Thomas was the first one to see her after delivery and he asked the nurse, "What's wrong with her ear" and the nurse replied, "Oh, you can fix that". I will never forget when they handed Graci to me, Thomas was right there beside me and he told me she had a "little ear". When I saw it I was devastated and honestly, scared to keep looking at it. I was so hurt and so angry. I now can sit here and say they have fixed it. I never in a million years, thought we would reach this point. We are here and we have conquered!! Graci has her NEW EAR....this is the moment I have dreamed of!
Suddenly, our name was called and we went back together as a family. We were all dressed in seersucker since Graci asked us to look cute. It was so nice to see the wonderful nursing staff again. They have been so great to work with and there are so many things that we are going to miss and the hospital and staff is one of them. It really saddens my heart to know that this would be our last trip to California and our last time seeing the most amazing staff and surgeon that gave Graci and an ear. We had lots of down time in the pre-op room which gave a lot of time for tears. Graci probably cried more this time than any other surgery. She held on to her Daddy several times and I would often look over there and see him holding her. Meanwhile, I was keeping Griffin occupied with his cute self, wearing his seer sucker pants and Guy Harvey shirt to the hospital. Graci picked it out for him. He was playing with a puppet that the nursing staff gave him and singing "Big Green Tractor" to it. There was a sweet moment when he went over to Graci's hospital bed and held her hand and bent over and kissed it. As usual, they gave Graci her liquid Valium and sent her back to the operating room. We sat in the waiting room with movies, ipods, phones, magazines, coffee and doughnuts and each other. It was just such a moment of relief that soon this journey would be behind us and Graci would have her "New Ear."
Well, Dr. Brent came out and said that Graci did great!! He showed us a picture of ear and i just dropped to my knees. It was such a wonderufl feeling and he had pierced her ears. It was so emotional for Thomas and I. It really is hard to describe the feeling that we felt. One, it was hard knowing that a 7 year old had to go through all this in just one year. I want to end this writing with a moment that I will never forget. The day Graci was born we had prepared ourselves that we would soon be parents of a beautiful daughter with cleft lip and palate, but not microtia. Of course, Thomas was the first one to see her after delivery and he asked the nurse, "What's wrong with her ear" and the nurse replied, "Oh, you can fix that". I will never forget when they handed Graci to me, Thomas was right there beside me and he told me she had a "little ear". When I saw it I was devastated and honestly, scared to keep looking at it. I was so hurt and so angry. I now can sit here and say they have fixed it. I never in a million years, thought we would reach this point. We are here and we have conquered!! Graci has her NEW EAR....this is the moment I have dreamed of!
Wednesday, June 9, 2010
AMAZING!
When reflecting back on the past four months all I can say is that God Answers Prayers. If there was a single work that describes my life it would be amazing; abosolutely unbeleivable amazing. Everything about my life and the people in my life are remarkable. And it reminds me that everywhere we turn and everywhere we look, we are surrounded by God's amazing grace. We live in an amazing world. It's amazing what we can accomplish using our amazing powers. However, our lives can fall well short of amazing. You must overcome your obstacles and believe you can and you can do absolutely amazing things. My life is an amazing gift thanks to my wonderful family, friends and my amazing daughter!!!
Graci is an amazing and precious little girl. Thomas and I thank God everyday for giving her to us. He created her and he made no mistakes. She has been an angel sent from above to fill our hearts with unending love. The past four months have been rough and rocky for Graci but at the end there has been happy tears! We had some trouble after returning from 3rd stage surgery with the healing process. Graci's skin graft got infected several times. We had difficulty with cleaning it. Graci didn't want us to touch it, clean it, look at it or even talk about it. I don't ever think about how hard this must be for her. I know that this is a gift for Graci and she has always been so confident and courageous. She certainly has been a miracle that never ceases to be miraculous...full of beauty, loving, caring and truly amazing. However, I know it's hard on her and even harder on me. After her last surgery, we felt like we didn't get specific instructions for caring for the ear after surgey; we kind of let it go. We knew it upset her if we remind her we needed to clean it or keep her hair up. I could tell she was getting frustrated with the whole process. Scabs were forming, puss was oozing and the ear was very irritated and this went on for three months. It just wasn't healing and it was never ending. Every day we would wake up looking at the ear and every night go to bed worrying about the ear. I have always wanted this journey to be of nothing but happy memories for her and what I wanted most was that she would soar confidently in her own sky. The "New Ear" was not so new any more and it was getting old to her. She rarely talked about it or showed it to anyone. However, we knew that we had to get it healed before leaving for 4th stage. After visiting a Duke Surgeon (recommended by Dr. Brent) three times we finally got it healed. Anyway, all is well with the ear and with answered prayers it looks fabulous. "An Ear for Graci"......truly amazing!
Our family was involved in another amazing fundraiser this year that we were so honored to be apart of. The Jeff Hawley Memorial Golf Tournament is an annual event that honors the late Jeff Hawley. Jeff battled with cancer and then lost his life in a motorcycle accidnet. Everyone remembers him as a wondeful father, friend and husband. I didn't know Jeff personally but have gotten to know his family. They are incredible people and I am sure Jeff was just as wonderful as they are. Each year the funds are used for a college fund for his daughter Elizabeth (who just loves and adores Graci) and another individual who they honor to help. This year they honored Graci. They were so excited to help Graci with her dreams of having "two ears" and we were so thankful to be apart of it. I thank God for that amazing day. We had over 100 golfers and volunteers dressed in pink and green for Graci. God and Jeff were both there that day making everything around us amazing. It was an amazing day with amazing people! Thank you Linda, Wendi, Jamie and Sweet Elizabeth, may God watch over you and protect you always.
I have always told Graci to beleive in herself and she will accomplish anything. Our goal this year was passing first grade. She had missed so much school with surgery, doctors appointments and was behind when she entered into the school year. I've always wanted her to achieve her goals and aspirations and to believe it with her heart and soul. There were times she lost the spark somewhere along the way, but we got it back. She worked so hard all year long. We believed in her, her teachers believed her and Graci believed in herself. I will neve forget the day she came home with a white piece of paper; Graci had passed first grade. I was so excited and she was too. It just proves how amazing she is!
Graci Girl...........you are amazing; totally completey 100% amazing. You have amazing abilities that can take you anywhere you dream of going. You have everything you will every need to live an extraordinary amazing life. Don't be afraid of being amazing.
Graci is an amazing and precious little girl. Thomas and I thank God everyday for giving her to us. He created her and he made no mistakes. She has been an angel sent from above to fill our hearts with unending love. The past four months have been rough and rocky for Graci but at the end there has been happy tears! We had some trouble after returning from 3rd stage surgery with the healing process. Graci's skin graft got infected several times. We had difficulty with cleaning it. Graci didn't want us to touch it, clean it, look at it or even talk about it. I don't ever think about how hard this must be for her. I know that this is a gift for Graci and she has always been so confident and courageous. She certainly has been a miracle that never ceases to be miraculous...full of beauty, loving, caring and truly amazing. However, I know it's hard on her and even harder on me. After her last surgery, we felt like we didn't get specific instructions for caring for the ear after surgey; we kind of let it go. We knew it upset her if we remind her we needed to clean it or keep her hair up. I could tell she was getting frustrated with the whole process. Scabs were forming, puss was oozing and the ear was very irritated and this went on for three months. It just wasn't healing and it was never ending. Every day we would wake up looking at the ear and every night go to bed worrying about the ear. I have always wanted this journey to be of nothing but happy memories for her and what I wanted most was that she would soar confidently in her own sky. The "New Ear" was not so new any more and it was getting old to her. She rarely talked about it or showed it to anyone. However, we knew that we had to get it healed before leaving for 4th stage. After visiting a Duke Surgeon (recommended by Dr. Brent) three times we finally got it healed. Anyway, all is well with the ear and with answered prayers it looks fabulous. "An Ear for Graci"......truly amazing!
Our family was involved in another amazing fundraiser this year that we were so honored to be apart of. The Jeff Hawley Memorial Golf Tournament is an annual event that honors the late Jeff Hawley. Jeff battled with cancer and then lost his life in a motorcycle accidnet. Everyone remembers him as a wondeful father, friend and husband. I didn't know Jeff personally but have gotten to know his family. They are incredible people and I am sure Jeff was just as wonderful as they are. Each year the funds are used for a college fund for his daughter Elizabeth (who just loves and adores Graci) and another individual who they honor to help. This year they honored Graci. They were so excited to help Graci with her dreams of having "two ears" and we were so thankful to be apart of it. I thank God for that amazing day. We had over 100 golfers and volunteers dressed in pink and green for Graci. God and Jeff were both there that day making everything around us amazing. It was an amazing day with amazing people! Thank you Linda, Wendi, Jamie and Sweet Elizabeth, may God watch over you and protect you always.
I have always told Graci to beleive in herself and she will accomplish anything. Our goal this year was passing first grade. She had missed so much school with surgery, doctors appointments and was behind when she entered into the school year. I've always wanted her to achieve her goals and aspirations and to believe it with her heart and soul. There were times she lost the spark somewhere along the way, but we got it back. She worked so hard all year long. We believed in her, her teachers believed her and Graci believed in herself. I will neve forget the day she came home with a white piece of paper; Graci had passed first grade. I was so excited and she was too. It just proves how amazing she is!
Graci Girl...........you are amazing; totally completey 100% amazing. You have amazing abilities that can take you anywhere you dream of going. You have everything you will every need to live an extraordinary amazing life. Don't be afraid of being amazing.
Tuesday, February 16, 2010
2 Ears 2 See!
Time for things to get back to normal! Whatever normal is in a house with 2 kids, a dog and 2 stressed out parents. Graci returned to school with her head dressing on and everyone was "all ears" to hear about her trip and surgery. She had a good first day back getting lots of valentine's cards and candy. She came home with a smile. Mommy's first day back at work was extremely hard and started with lots of tears while sitting at my desk. It hurt my heart so bad to leave my family and return to work. I was missing them so bad and wanted to be surrounded by people who cared and didn't feel that way.
Well the only way to see a rainbow is to look through the rain. That's the feeling I felt when trying to explain to a 6 year old girl that her bandage had to come off. She didn't want it off because she knew in her mind that it didn't quite look like the other one. I explained to her that I wanted to see my sweet girl look me in eyes with 2 ears. She said OK, help me. I began to take the outer bandage off and she was shaking so bad. Tears were pouring down her face and she was screaming, "Stop Mommy, I'm scared". She was afraid and frightened. All I could think about was if this journey was ever going to live a scar on her life. A journey that she may later regret. I just kept reminding myself and remembering the smile on her face when I told her about her journey to her ear.
Graci DID IT! That is what she was yelling running down the hallway with the rest of the bandage. She had taken it off herself. She didn't want me in the room at all. I noticed her standing in front of the mirror working on trying to get it off. Mommy, I Did it! I looked up and said, "You are beautiful". I can't even begin to tell you the feeling I felt looking at my daughter with 2 ears. It was a breath taking moment and that is what life is all about not by the breaths we take, but seeing a little girl smile. She was glowing and ever so gorgeous. I know that Graci's not perfect and never will be, but she has reached up and grabbed the stars. I tell her often that it's not easy reaching for your dream but strength and courage will help you reach your goal.
Well the only way to see a rainbow is to look through the rain. That's the feeling I felt when trying to explain to a 6 year old girl that her bandage had to come off. She didn't want it off because she knew in her mind that it didn't quite look like the other one. I explained to her that I wanted to see my sweet girl look me in eyes with 2 ears. She said OK, help me. I began to take the outer bandage off and she was shaking so bad. Tears were pouring down her face and she was screaming, "Stop Mommy, I'm scared". She was afraid and frightened. All I could think about was if this journey was ever going to live a scar on her life. A journey that she may later regret. I just kept reminding myself and remembering the smile on her face when I told her about her journey to her ear.
Graci DID IT! That is what she was yelling running down the hallway with the rest of the bandage. She had taken it off herself. She didn't want me in the room at all. I noticed her standing in front of the mirror working on trying to get it off. Mommy, I Did it! I looked up and said, "You are beautiful". I can't even begin to tell you the feeling I felt looking at my daughter with 2 ears. It was a breath taking moment and that is what life is all about not by the breaths we take, but seeing a little girl smile. She was glowing and ever so gorgeous. I know that Graci's not perfect and never will be, but she has reached up and grabbed the stars. I tell her often that it's not easy reaching for your dream but strength and courage will help you reach your goal.
Arriving Home!!
Well we couldn't have been more happier to see snow! You see our plane was delayed because 49 states had gotten snow. What was mother nature thinking, doing that to the Brown Family who was so eager to get home to the Tarheel State. We arrived at RDU with all smiles! In fact, when we landed, I shouted, "I love North Carolina". I had certainly had enough of the busy city life and was ready to get back to my roots. Well, GaGa was waiting right there for us as we were headed to get our luggage. I believe Griffin was the first one to spot him and ran up to him with his arms wide open. Tears were in all of our eyes.
The trip to Wilson was mostly of Thomas and his Dad talking about our time in California and all the incredible things we were able to do. Of course the kids feel asleep and were resting peacefully and I was able to gather some thoughts about "my little darling." I am so proud of her. I know that Graci is gifted in so many ways and she is constantly unwrapping her packages everyday. She truly amazes me!
When walking into the house it was such a surprise. There were pink and white balloons and streamers everywhere, banners, cards, candy and you could tell lots of love. A dear friend of the family, Missy Parker, had decorated the house and the kids room. She wanted us to feel special and especially the kids. They just loved it! In fact we just stopped what we were doing and started playing volleyball with the balloons. (Griffin's idea of fun). It was such a warm feeling coming into our home. Our family and friends have helped us along this journey more than they will ever know. Family is the most important thing in this world to me. My true friends have been my quite angels who sit on my shoulder and lift my wings when I have forgotten how to fly. Thank you to all of you.....and you know who you are!!
The trip to Wilson was mostly of Thomas and his Dad talking about our time in California and all the incredible things we were able to do. Of course the kids feel asleep and were resting peacefully and I was able to gather some thoughts about "my little darling." I am so proud of her. I know that Graci is gifted in so many ways and she is constantly unwrapping her packages everyday. She truly amazes me!
When walking into the house it was such a surprise. There were pink and white balloons and streamers everywhere, banners, cards, candy and you could tell lots of love. A dear friend of the family, Missy Parker, had decorated the house and the kids room. She wanted us to feel special and especially the kids. They just loved it! In fact we just stopped what we were doing and started playing volleyball with the balloons. (Griffin's idea of fun). It was such a warm feeling coming into our home. Our family and friends have helped us along this journey more than they will ever know. Family is the most important thing in this world to me. My true friends have been my quite angels who sit on my shoulder and lift my wings when I have forgotten how to fly. Thank you to all of you.....and you know who you are!!
Saturday, February 13, 2010
North Carolina Bound....OR NOT?
Of course leaving California is always bittersweet. We have really come to love California because this is well it all started, where this remarkable journey began for Graci. We have made some wonderful memories here as a family. It certainty has made our time here so worth while knowing that we are here for "An Ear For Graci". Therefore, it is sad and often breaks my heart when we leave. It will be extremely sad when we say our good-byes in June. We owe so much to Dr. Brent and his staff for the love they have for children. He often says at times, "I wish I could help them all no matter their race or financial situation". He truly has a a heart for helping children with mircotia. He is like an artist with a surgeon's hand. It amazes me how he can construct ears for all these precious kids. He has over 25 years of experience and has repaired over 1,000 ears. Just a remarkable man with such talent.
Anyway, we are suppose to be home, but yet I am sitting back in this suite typing up this blog!!! Why??? Our flight got cancelled due to the weather all across the US. We all handled it well except Graci. She had a meltdown and just didn't understand why we couldn't just walk home since we have been doing alot of walking all week. Griffin was excited we were coming back to the "hotel" to stay. It was such a disappointment because we are ready to be home and to sleep in our own bed. We are ready to see some subdivisions, rednecks, big trucks, less traffic, people that speak English and just the smell of home!!
We decided to make the best of being stuck in San Fransisco!! So we took Griffin to Hooters and he even got a t-shirt. Actually we were all starving and it was the closet place around. Griffin thought all the girls were gorgeous and Graci couldn't understand why the girls were wearing what they were wearing. In fact, the first thing she said was, "Mommy look at their outfits". She will often tell you "what not to wear". She often looked at me this week and told me I looked terrible or she didn't like my pants or shirt. It's really hard being a DIVA. Anyway, we enjoyed our lunch, but I think Griffin did more. He was playing football with the girls and Graci even got to hola-hoop with them. We had a fun lunch and it was just what we needed to make us all laugh after a disappointing morning.
We walked around Fisherman's Wharf which is the #1 popular tourist attraction in San Fransisco with lots of side walk restaurants, shops and other attractions on the pier. We were able to shop for our friends and families and just admire the beautiful and busy city life. However, this made us want to be home even more. Well, we are suppose to take off in the am and are NC Bound....we hope :)
Anyway, we are suppose to be home, but yet I am sitting back in this suite typing up this blog!!! Why??? Our flight got cancelled due to the weather all across the US. We all handled it well except Graci. She had a meltdown and just didn't understand why we couldn't just walk home since we have been doing alot of walking all week. Griffin was excited we were coming back to the "hotel" to stay. It was such a disappointment because we are ready to be home and to sleep in our own bed. We are ready to see some subdivisions, rednecks, big trucks, less traffic, people that speak English and just the smell of home!!
We decided to make the best of being stuck in San Fransisco!! So we took Griffin to Hooters and he even got a t-shirt. Actually we were all starving and it was the closet place around. Griffin thought all the girls were gorgeous and Graci couldn't understand why the girls were wearing what they were wearing. In fact, the first thing she said was, "Mommy look at their outfits". She will often tell you "what not to wear". She often looked at me this week and told me I looked terrible or she didn't like my pants or shirt. It's really hard being a DIVA. Anyway, we enjoyed our lunch, but I think Griffin did more. He was playing football with the girls and Graci even got to hola-hoop with them. We had a fun lunch and it was just what we needed to make us all laugh after a disappointing morning.
We walked around Fisherman's Wharf which is the #1 popular tourist attraction in San Fransisco with lots of side walk restaurants, shops and other attractions on the pier. We were able to shop for our friends and families and just admire the beautiful and busy city life. However, this made us want to be home even more. Well, we are suppose to take off in the am and are NC Bound....we hope :)
Friday, February 12, 2010
Post-Op
The post op appointment was hard for Graci. It took over a hour to get the stitches and packing out. Daddy was so helpful and held Graci's hand all along the way. The nurse was so sweet and was doing all she could to encourage Graci and to assure her that she would never hurt her. Graci was just so scared and it was so sad watching her like that. But we managed and we got through it and Graci was pleased. She looked in the mirror several times and said, "it looks good". We had to explain to her that the ear was quite swollen and seems to project almost too far from the head. However, as the skin graft heals it shrinks and pulls the ear close to the head again. The effect was somewhat dramatic but yet still amazing. The gauze patch was also removed from the groin leaving a nice scar. Afterwards, the nurse handed Graci the mirror and said, "Look at Graci with 2 ears". I almost started crying because our dream had come true. Our daughter now had 2 ears like her brother.
Well, Dr. Brent came and took a look at the ear and was pleased. He actually said it wasn't as swollen as most and it really looked close to size. The nurse then began to re-apply the head dressing and Graci said she was glad because she is so afraid of her ear. She is afraid that something or someone is going to mess it up. We take the head dressing off in 3-4 days and apply ointment to keep the skin graft on the back of the ear lubricated. The bad news is that there is a finale. We will be returning in June for 4th stage where he will touch up the rough spots with skin and this allows the ear to look smooth. Who would have every thought this process would take over a year but what a remarkable and exciting journey it has been.
We will post a picture once the head dresisng is off.............thank you all for your prayers, calls, text and emails!! Graci loves her Fans!!
Well, Dr. Brent came and took a look at the ear and was pleased. He actually said it wasn't as swollen as most and it really looked close to size. The nurse then began to re-apply the head dressing and Graci said she was glad because she is so afraid of her ear. She is afraid that something or someone is going to mess it up. We take the head dressing off in 3-4 days and apply ointment to keep the skin graft on the back of the ear lubricated. The bad news is that there is a finale. We will be returning in June for 4th stage where he will touch up the rough spots with skin and this allows the ear to look smooth. Who would have every thought this process would take over a year but what a remarkable and exciting journey it has been.
We will post a picture once the head dresisng is off.............thank you all for your prayers, calls, text and emails!! Graci loves her Fans!!
Thursday, February 11, 2010
Wonderful Week in CA
What a wonderful week we have had here in Southern California. Many mornings began with Griffin waking us all up with several kisses on the forehead and then him screaming that he wanted to go to the "Wobby" to eat breakfast. Breakfast was always nice sitting down as a family and Graci being so independent that she had to fix her breakfast by her self every morning. Griffin was the "king of the suite" and everyone heard him coming a mile away. He would let everyone in the "wobby" know exactly where we were sitting and how awful the food was at times. He ruled the roof, that's for sure. The last day here he walked around like a little "hottie" in his seersucker pants and polo shirt......he even wanted to wear the peach tie with sailboats and the coat to breakfast but I told him it wasn't church. He said, "Mom its my costume".
We visited the Children's Discovery Museum of San Jose. It is one of the largest museum of it's kind in the nation. The kids really enjoyed it and it's really well equipped. Both of them loved all the hands on equipment, the craft room and playing chef in the pizza room. Griffn loved the firetruck, ambulance and tractor that he could climb on. Graci's favorite part was the WaterWays. They enjoyed playing with the colorful balls and guided them through the many waterways and tunnels. Graci loved pulling the pulleys and watching the balls fly up and water splash all over her. Many times Thomas and I would just sit down and watch the kids learn through concrete interaction, touching, exploring, manipulating and experimenting. In fact, every day they asked to go back.
Welcome to the Alcatraz Island!! That is what we heard on our cell house audio tour. We heard it from the men who actually lived it from correctional officers and inmates who lived on the island during the infamous Federal Penitentiary Era. We took the Alcatraz Cruise and the viewed the San Francisco Bay and the Golden Gate Bridge from the island. It was amazing, in fact, it was breath taking. It was quite an interesting experience visiting a federal prison and trying to explain to a 3 and 6 year about prisoners. Griffin was scared that if he did anything wrong he would be sentenced to "life in Alcatraz". I can't forget to tell you that the distance through the Alcatraz is equivalent to climbing a thirteen story building. So we have a 3 year old who is constantly saying, "carry me" and a 6 year old who has just had ear reconstruction. What were we thinking?? The trip including lots of walking up steep and hilly distances. However, I must say it was an inescapable experience!!
We couldn't leave without going to the Golden Gate Park. It is a large urban park that consisted of over 1,000 acres. It is often compared to Central Park in NYC. It is the ultimate haven away from the urban chaos. It was definitely a place to play and relax after riding in the busy city trying to find the ends and out of the Park. There is so much to do there from gardens, museums, recreation to the ocean view. We only saw a short part of God's beautiful nature and only had a short time to explore the park but it was by far the most beautiful and calming place I've ever visited.
Later leaving their Mommy had to visit Chinatown. I had no idea it was the largest Chinatown outside of Asia. It was total nightmare trying to find it but when you did it was obvious you were in "Chinatown". It is about 8 blocks long and many shops are open and the streets are busy. Griffin did get to try on a San Fran Fire Dept. outfit with the Fireman. It was a pretty cool moment with Grififn on the streets of Chinatown rocking the Fireman gear. Let me make sure I mention that parking isn't just scare here, it's almost non-existent which can be very frustrating.
Leaving Chinatown wasn't fun............we ran into afternoon traffic and of course one of the biggest games of the UNC season was playing at 6 and we were stuck in traffic at 5:30. Not good for a girl who just spent over 100 dollars on pocketbooks and jewelry. Needless to say we got back to the room right before halftime and UNC still wasn't able to pull it through. So much for the good luck charms we bought in Chinatown.......Still Tarheels At Heart :)
We visited the Children's Discovery Museum of San Jose. It is one of the largest museum of it's kind in the nation. The kids really enjoyed it and it's really well equipped. Both of them loved all the hands on equipment, the craft room and playing chef in the pizza room. Griffn loved the firetruck, ambulance and tractor that he could climb on. Graci's favorite part was the WaterWays. They enjoyed playing with the colorful balls and guided them through the many waterways and tunnels. Graci loved pulling the pulleys and watching the balls fly up and water splash all over her. Many times Thomas and I would just sit down and watch the kids learn through concrete interaction, touching, exploring, manipulating and experimenting. In fact, every day they asked to go back.
Welcome to the Alcatraz Island!! That is what we heard on our cell house audio tour. We heard it from the men who actually lived it from correctional officers and inmates who lived on the island during the infamous Federal Penitentiary Era. We took the Alcatraz Cruise and the viewed the San Francisco Bay and the Golden Gate Bridge from the island. It was amazing, in fact, it was breath taking. It was quite an interesting experience visiting a federal prison and trying to explain to a 3 and 6 year about prisoners. Griffin was scared that if he did anything wrong he would be sentenced to "life in Alcatraz". I can't forget to tell you that the distance through the Alcatraz is equivalent to climbing a thirteen story building. So we have a 3 year old who is constantly saying, "carry me" and a 6 year old who has just had ear reconstruction. What were we thinking?? The trip including lots of walking up steep and hilly distances. However, I must say it was an inescapable experience!!
We couldn't leave without going to the Golden Gate Park. It is a large urban park that consisted of over 1,000 acres. It is often compared to Central Park in NYC. It is the ultimate haven away from the urban chaos. It was definitely a place to play and relax after riding in the busy city trying to find the ends and out of the Park. There is so much to do there from gardens, museums, recreation to the ocean view. We only saw a short part of God's beautiful nature and only had a short time to explore the park but it was by far the most beautiful and calming place I've ever visited.
Later leaving their Mommy had to visit Chinatown. I had no idea it was the largest Chinatown outside of Asia. It was total nightmare trying to find it but when you did it was obvious you were in "Chinatown". It is about 8 blocks long and many shops are open and the streets are busy. Griffin did get to try on a San Fran Fire Dept. outfit with the Fireman. It was a pretty cool moment with Grififn on the streets of Chinatown rocking the Fireman gear. Let me make sure I mention that parking isn't just scare here, it's almost non-existent which can be very frustrating.
Leaving Chinatown wasn't fun............we ran into afternoon traffic and of course one of the biggest games of the UNC season was playing at 6 and we were stuck in traffic at 5:30. Not good for a girl who just spent over 100 dollars on pocketbooks and jewelry. Needless to say we got back to the room right before halftime and UNC still wasn't able to pull it through. So much for the good luck charms we bought in Chinatown.......Still Tarheels At Heart :)
Sunday, February 7, 2010
3rd stage Ear Surgery
We arrived bright and early at the El Camino Surgical Center. Graci almost made us late trying to decide what she was she was going to wear. I explained to her that it wasn't a fashion show and that she was about to have surgery. She said, I know Mommy but I can't look hideous. I just chuckled and reminded her of the lovely pj's that she was going to have to wear and the gorgeous hair bonnet that they were going to give her. We had our bags packed full of stuff for little "G-Man" to do while we waited anxiously for 3 hours for the princess to be done. Griffin has always been there for his sister. I don't think he will ever make it through life without his sister. He often calls her "Grace" and I know they will be soul mates for life. Griffin will look back at his childhood and the highlight will be always being there for his sister.
Well, 3rd stage ear reconstruction was just as successful as the 1st and 2nd. I can't even begin to tell you the feeling you get with Dr. Brent comes through those doors grinning from "ear to ear". He sits down right beside you and begins to tell you all about the procedure and shows you pictures. It just makes your heart flutter and you feel all warm inside. He explained that Graci did great and that she was such a trooper. Well, in recovery she slept alot and complained none.
She woke up wanting ice cream and of course for Mommy to never leave her side. I stayed the night with her and I even got to sleep in the hospital bed with her. We painted finger nails in bed and made valentine's day cards along with putting on lip gloss and eyeshadow. We both slept so good all snuggled up to one another.
It reminded me of a song by Martina McBride. In my daughter's eyes I am a hero, I am strong and wise and I have no fear. But the truth is plain to see she was sent to rescue me, I see who I won't to be in my daughter's eyes. In my daughter's eyes everyone is equal, darkness turns to light and everyone is at peace. The miracle God gave to me gives me strength when I am weak. I find reason to believe in Graci's eyes. When I feel like giving up I see the light in my daughter's eyes and when she wraps her hands around my finger it puts a smile in my heart. In my daughter' eyes I can see the future and though one day she will grow and someday leave and maybe raise a family. When I am gone I hope you will see how happy you made me. There have been so many times when I have felt like giving up and it's so hard to hang on when your heart has had enough, but when I see the light in Graci's eyes, I soon realize what life is all about it.
Well, 3rd stage ear reconstruction was just as successful as the 1st and 2nd. I can't even begin to tell you the feeling you get with Dr. Brent comes through those doors grinning from "ear to ear". He sits down right beside you and begins to tell you all about the procedure and shows you pictures. It just makes your heart flutter and you feel all warm inside. He explained that Graci did great and that she was such a trooper. Well, in recovery she slept alot and complained none.
She woke up wanting ice cream and of course for Mommy to never leave her side. I stayed the night with her and I even got to sleep in the hospital bed with her. We painted finger nails in bed and made valentine's day cards along with putting on lip gloss and eyeshadow. We both slept so good all snuggled up to one another.
It reminded me of a song by Martina McBride. In my daughter's eyes I am a hero, I am strong and wise and I have no fear. But the truth is plain to see she was sent to rescue me, I see who I won't to be in my daughter's eyes. In my daughter's eyes everyone is equal, darkness turns to light and everyone is at peace. The miracle God gave to me gives me strength when I am weak. I find reason to believe in Graci's eyes. When I feel like giving up I see the light in my daughter's eyes and when she wraps her hands around my finger it puts a smile in my heart. In my daughter' eyes I can see the future and though one day she will grow and someday leave and maybe raise a family. When I am gone I hope you will see how happy you made me. There have been so many times when I have felt like giving up and it's so hard to hang on when your heart has had enough, but when I see the light in Graci's eyes, I soon realize what life is all about it.
Arriving in CA/Pre-OP
We arrived safe and sound in Southern California. There were lots of tears left behind. Graci and Mommy both cried together as we left MeMe and GaGa behind at the airport. Graci was constantly looking back at her MeMe and waving at her. It was the sweetest thing ever; and it just crushes my heart when she says, "Mommy, I don't' even want to go." Because I know deep down in her heart she wants her ear to be complete and to put this journey behind us.
We got all settled in our suite for the next 2 weeks and enjoyed some family time. We went for the pre-op and Dr. Brent explained to Graci that he was going to take some skin from her groin area and going to lift her ear off her head using her skin. This was going to allow her ear to look like a "real ear" producing a limited space behind the ear. She looked at him with her green eye and shrugged her shoulders and said, "Oh, OK." We had explained the procedure to her and she never once asked any questions. She is so humble and I am amazed every day by her strength. She always finds laughter and is able to smile no matter how painful her situation might be.....she is such a survivor. I know that at times she is scared to death but she her courage is remarkable. It's kind of like the saying from, Mother Teresa, "I know that God will not give me anything I can't handle. I just wish he didn't trust me so much." That reminds me of Graci Girl!
We got all settled in our suite for the next 2 weeks and enjoyed some family time. We went for the pre-op and Dr. Brent explained to Graci that he was going to take some skin from her groin area and going to lift her ear off her head using her skin. This was going to allow her ear to look like a "real ear" producing a limited space behind the ear. She looked at him with her green eye and shrugged her shoulders and said, "Oh, OK." We had explained the procedure to her and she never once asked any questions. She is so humble and I am amazed every day by her strength. She always finds laughter and is able to smile no matter how painful her situation might be.....she is such a survivor. I know that at times she is scared to death but she her courage is remarkable. It's kind of like the saying from, Mother Teresa, "I know that God will not give me anything I can't handle. I just wish he didn't trust me so much." That reminds me of Graci Girl!
Monday, February 1, 2010
Packing in the Snow!!!
Wow, What a wonderful weekend we had and now it's time to pack for California. It is about 23 degrees here in North Carolina and have had some winter weather this weekend. It started Friday night and the kids played in the snow and rode their John Deer Tractor and we had some friends over for a snow celebration. Saturday and Sunday included with lots of sledding and many surprises. The kids had a blast snow tubing and sledding down the hills here in Wilson. Mommy was worried that Graci would get hurt three days before surgery, but we are all in tact leaving us with just a few bruises, scrapes and soreness.
Ok, well the packing and excitement starts today. We leave in the morning for RDU to fly to San Fransisco CA for 3rd stage ear reconstruction. The procedure begins with a skin graft which will be taken from Graci's groin region. This will leave a linear scar in the crease between the abdomen and thigh, somewhat like a hernia scar. The skin graft is used to make Graci's ear look like a "real ear". The 3rd stage separates the ear from the head with the skin graft, producing a limited space behind the ear. When this surgical procedure is first performed, the ear appears quite swollen and seems to project almost too far from the head. However, as the skin graft heals it shrinks and pulls the ear close to the head rather then an ear under the skin. Of all stages of the ear repair, the 3rd stage (the new ear) is probably most delicate and vulnerable after surgery, and trying to explain this to a very active 6 year old will be challenging. However, Graci will come home with a "new ear" and earrings. Yes, Dr. Brent pierces her ears before we leave so Graci will come home with pierced ear. The tears of course are now pouring down my face because our dreams are coming true and I am so happy for "sweet Graci". My heart hurts so bad for Graci and all that she has already gone through. Her journey to her ear ends soon, but her journey will never end. Graci will face so many challenges in the future and soon will go through 3 stage jaw reconstruction. But I have no doubt that she will be just as strong as she is now.
Mommy went out and shopped and bought Graci some new clothes because she has to have button up shirts and dresses to put over the head dressing. We also have a new vera bradley since we have had a new one on every trip and lots of goodies and fun things to do on the airplane. It's time to pack and rejoice in the Lord.....we are headed out in the am.
I can't end without thanking everyone for your thoughts, prayers and making this dream a reality. Thank you to our wonderful and beautiful family for always being there and for all the words of encouragement. There have been times when I was weak and have had endless nights of tears but hearing Graci and Griffin say, "Mommy why are you sad?" made me realize that no trouble is too big for me to overcome. My faithful and true friends have been the medicine of my life and have held my hands and have kept me strong. Difficult times have helped me understand better than before, how infinitely rich and beautiful life is in every way. Life has treated my family so well and we are so thankful and grateful in so many ways. Please pray for safety of travel and best wishes to Graci as the surgeon works on her ear. I pray that Graci is happy with the outcome and can't wait to see the smile on her face when the bandage is removed.
Ok, well the packing and excitement starts today. We leave in the morning for RDU to fly to San Fransisco CA for 3rd stage ear reconstruction. The procedure begins with a skin graft which will be taken from Graci's groin region. This will leave a linear scar in the crease between the abdomen and thigh, somewhat like a hernia scar. The skin graft is used to make Graci's ear look like a "real ear". The 3rd stage separates the ear from the head with the skin graft, producing a limited space behind the ear. When this surgical procedure is first performed, the ear appears quite swollen and seems to project almost too far from the head. However, as the skin graft heals it shrinks and pulls the ear close to the head rather then an ear under the skin. Of all stages of the ear repair, the 3rd stage (the new ear) is probably most delicate and vulnerable after surgery, and trying to explain this to a very active 6 year old will be challenging. However, Graci will come home with a "new ear" and earrings. Yes, Dr. Brent pierces her ears before we leave so Graci will come home with pierced ear. The tears of course are now pouring down my face because our dreams are coming true and I am so happy for "sweet Graci". My heart hurts so bad for Graci and all that she has already gone through. Her journey to her ear ends soon, but her journey will never end. Graci will face so many challenges in the future and soon will go through 3 stage jaw reconstruction. But I have no doubt that she will be just as strong as she is now.
Mommy went out and shopped and bought Graci some new clothes because she has to have button up shirts and dresses to put over the head dressing. We also have a new vera bradley since we have had a new one on every trip and lots of goodies and fun things to do on the airplane. It's time to pack and rejoice in the Lord.....we are headed out in the am.
I can't end without thanking everyone for your thoughts, prayers and making this dream a reality. Thank you to our wonderful and beautiful family for always being there and for all the words of encouragement. There have been times when I was weak and have had endless nights of tears but hearing Graci and Griffin say, "Mommy why are you sad?" made me realize that no trouble is too big for me to overcome. My faithful and true friends have been the medicine of my life and have held my hands and have kept me strong. Difficult times have helped me understand better than before, how infinitely rich and beautiful life is in every way. Life has treated my family so well and we are so thankful and grateful in so many ways. Please pray for safety of travel and best wishes to Graci as the surgeon works on her ear. I pray that Graci is happy with the outcome and can't wait to see the smile on her face when the bandage is removed.
Sunday, January 3, 2010
Busy Holidays!!
Since returning from our last trip, I must say I am very pleased with Graci's Ear. It looks better and better everyday. However, Graci doesn't think so. There's no more ponytails or ping tails or hair up anymore. Graci always wants her hair down and on her ear so no one will see it. I ask her all the time, "Does anyone say anything about your ear". She always smiles so big and tells me No. It's not complete, it's not done, it doesn't look like an ear yet. I honestly, think in my heart she was use to her small little ear. I miss it and I think Graci does too. I'm very thankful that we have come to this point in her life where she will have the dream we have all been waiting for but; I do miss her small ear.
Anyway, we have been very busy the past two months will holidays and visiting family. Graci has had a wonderful time playing with her niece and nephews. She has been healthy and just a sweet angel as always. She has had some mild hearing loss in her good ear due to the tube that has fallen out. She now listens to the TV and the radio so loud that you can't even hear yourself think. She is constantly saying, huh...what did you say?? Well, we plan on putting that tube back in next week at UNC and she will have a tooth pulled that has grown in her cleft. The tooth is dead and decayed and getting in the way. She mentioned to me tonight that they didn't want them to take it out because she would be missing a tooth. If she only knew the dental work that was only yet to come for her. We are just hoping that the tube will work and there isn't any permanent hearing loss.
Now, that the holidays are over, it is time to start planning again. We leave February 2nd for 10 days for 3rd stage ear reconstruction. Well, I'm little nervous because Graci will miss so much school; but, we will make it up and she will do fine. It's also going to be cold and don't like flying in February. God is our pilot and everything will be just fine. This has been one remarkable year for us. The generosity of the people brings tears to my eyes and I get emotional every time I think and talk about it. Well, we have almost reached our goal and to God be the glory!! Graci you are mommy's sunshine and you are so beautiful to me. My Wish for you is that you get all that you deserve!!!! In my daughter's Eyes I can see the future!!!
Anyway, we have been very busy the past two months will holidays and visiting family. Graci has had a wonderful time playing with her niece and nephews. She has been healthy and just a sweet angel as always. She has had some mild hearing loss in her good ear due to the tube that has fallen out. She now listens to the TV and the radio so loud that you can't even hear yourself think. She is constantly saying, huh...what did you say?? Well, we plan on putting that tube back in next week at UNC and she will have a tooth pulled that has grown in her cleft. The tooth is dead and decayed and getting in the way. She mentioned to me tonight that they didn't want them to take it out because she would be missing a tooth. If she only knew the dental work that was only yet to come for her. We are just hoping that the tube will work and there isn't any permanent hearing loss.
Now, that the holidays are over, it is time to start planning again. We leave February 2nd for 10 days for 3rd stage ear reconstruction. Well, I'm little nervous because Graci will miss so much school; but, we will make it up and she will do fine. It's also going to be cold and don't like flying in February. God is our pilot and everything will be just fine. This has been one remarkable year for us. The generosity of the people brings tears to my eyes and I get emotional every time I think and talk about it. Well, we have almost reached our goal and to God be the glory!! Graci you are mommy's sunshine and you are so beautiful to me. My Wish for you is that you get all that you deserve!!!! In my daughter's Eyes I can see the future!!!
Tuesday, October 6, 2009
2nd stage Ear Surgery
Well, the alarm went off early this morning and we all got a good nights sleep to prepare for the long day ahead of us. Graci woke up smiling and ready to put behind her, yet another surgery that would have her closer to her "New Ear".
We arrived at the Surgical Center at 6:30 am with gear in hand and angels watching over us. Graci and I had on our matching monogrammed t-shirts on so we could feel connected to one another. The surgery that Graci was having was 2nd stage Earlobe Transposition. Dr. Brent was going to reposition Graci's earlobe by releasing the earlobe surgically, moving it lower and placing it in the correct position. Many families that we had talked to stated that 2nd stage was a breeze. However, anytime your child is having surgery it tends to be difficult, regarding how much of a breeze the surgery is. It wasn't until Graci crawled up in the bed with those lovely hospital PJ's and looked at her Daddy with huge alligator tears that I lost it. For that split second, she was actually scared and reality had hit that she was going to be taking away from her family for three hours to have surgery. After a couple of rubs on the arm, hugs around the neck, kisses on the cheek and the liquid Valium...she was fine. She knew that we would anxiously be waiting for her in the waiting room waiting for Dr. Brent to come through those double doors.
While waiting in the lobby I was able to relax with coffee and doughnuts. I completed my Children's Book, "An Ear for Graci". I also enjoyed watching Griffin color picture for his sweet sister while she was in the operating room. They certainly share a unique bond of love and friendship. The two of them share respect and joy for each other. Griffin is so happy and excited for his sister and the journey she is experiencing. Griffin sees his sister as a superhero and a forever friend. She truly is his best friend. I know one day they will grow old; but, I hope they will always have that close relationship.
It was that time when Dr. Brent came through those double doors smiling from "ear to ear" as he always does with camera in hand. He explained that surgery went well and Graci was once again a real trooper. She showed us pictures of what was now a ear with an earlope. It was phenomenal the work he had done in less then 3 hours. He was happy and so were we.
Graci woke up in recovery grumpy and fussy but her first words were, "I want to go home". Once the nurse heard that she knew Graci was feeling fine and much eager to get out of recovery. We changed her clothes and got her already to leave. She was such a trooper and a brave girl....so eager to leave just hours after having ear reconstruction. She is truly an amazing little girl. We headed to Walgreen's to get some goodies and things that would make her happy for the day. We had to get stickers to cover that lovely head piece that I think she had forgotten she was going to have. Once we entered in the apartment she immediately ran to the mirror to look at herself and stated assembling stickers on the bandage and then slowly drifted off the sleep watching Hannah Montana.
We are truly indebted to the numerous of people all over the US for making this dream come true for Graci. We have certainly reached yet another milestone and we are half way there. A special thanks to friends and family, thank you once again for all your prayers, love and support during this second phase of our journey. As you know the journey doesn't end here because we return to this wonderful state of California again in February for 3rd stage......until we meet again!
We arrived at the Surgical Center at 6:30 am with gear in hand and angels watching over us. Graci and I had on our matching monogrammed t-shirts on so we could feel connected to one another. The surgery that Graci was having was 2nd stage Earlobe Transposition. Dr. Brent was going to reposition Graci's earlobe by releasing the earlobe surgically, moving it lower and placing it in the correct position. Many families that we had talked to stated that 2nd stage was a breeze. However, anytime your child is having surgery it tends to be difficult, regarding how much of a breeze the surgery is. It wasn't until Graci crawled up in the bed with those lovely hospital PJ's and looked at her Daddy with huge alligator tears that I lost it. For that split second, she was actually scared and reality had hit that she was going to be taking away from her family for three hours to have surgery. After a couple of rubs on the arm, hugs around the neck, kisses on the cheek and the liquid Valium...she was fine. She knew that we would anxiously be waiting for her in the waiting room waiting for Dr. Brent to come through those double doors.
While waiting in the lobby I was able to relax with coffee and doughnuts. I completed my Children's Book, "An Ear for Graci". I also enjoyed watching Griffin color picture for his sweet sister while she was in the operating room. They certainly share a unique bond of love and friendship. The two of them share respect and joy for each other. Griffin is so happy and excited for his sister and the journey she is experiencing. Griffin sees his sister as a superhero and a forever friend. She truly is his best friend. I know one day they will grow old; but, I hope they will always have that close relationship.
It was that time when Dr. Brent came through those double doors smiling from "ear to ear" as he always does with camera in hand. He explained that surgery went well and Graci was once again a real trooper. She showed us pictures of what was now a ear with an earlope. It was phenomenal the work he had done in less then 3 hours. He was happy and so were we.
Graci woke up in recovery grumpy and fussy but her first words were, "I want to go home". Once the nurse heard that she knew Graci was feeling fine and much eager to get out of recovery. We changed her clothes and got her already to leave. She was such a trooper and a brave girl....so eager to leave just hours after having ear reconstruction. She is truly an amazing little girl. We headed to Walgreen's to get some goodies and things that would make her happy for the day. We had to get stickers to cover that lovely head piece that I think she had forgotten she was going to have. Once we entered in the apartment she immediately ran to the mirror to look at herself and stated assembling stickers on the bandage and then slowly drifted off the sleep watching Hannah Montana.
We are truly indebted to the numerous of people all over the US for making this dream come true for Graci. We have certainly reached yet another milestone and we are half way there. A special thanks to friends and family, thank you once again for all your prayers, love and support during this second phase of our journey. As you know the journey doesn't end here because we return to this wonderful state of California again in February for 3rd stage......until we meet again!
2nd Stage of Journey
Preparation for this trip required little thought. We were only going to be gone three nights so we were trying to pack as little as possibly. The main things were coats and goodies for the plane ride. We didn't prepare for the cold weather last trip, and we needed more things to keep the kids busy for the 6 hour plane ride. Graci never once stated that she didn't want to come to California for surgery; however, she was just dreading the long ride (along with Mommy). I think Graci is a lot like me and has difficulty sitting still because we always feel like we have to be doing something. Well, Me Me had bought Graci and DS Nintendo and Mommy had gotten Graci a new vera bradley. So, we stuffed it with lots of candy, markers, pads and makeup all given from a formal teacher of Graci's. She had plenty of things to keep a girlie girl busy.
The plane ride was just like any other plane ride, crowded with lots of smelly people. I enjoy my space too much and I have a issues with smells. There were people every where falling asleep with their mouths open and all these weird smells all around me. Anyway, Griffin watched movies and Graci kept herself busy playing and she even sat beside a Spanish girl and they colored and laughed together. It was really sweet watching two innocent girls who didn't even know laugh and smile together. One would giggle and then the other would giggle and their smiles were contagious. They had everyone around them smiling. In the meantime, I was actually able to relax and read a book. "A Flame on the Front Line" written by John Weaver, my dear brother. The book explores his aspects of life as a child, teenage and then discuss his journey from America to Afghanistan. He now shares God's love in Afghanistan and has been helping Afghans for over 25 years. If any of you are interested in learning more about this remarkable man, please consider purchasing a book from amazon. Anyway, this book got me thinking about my very own child hood. My child hood consisted of growing up with three older brothers and a younger sister who is now my best friend and the divorce of my parents. John's book took me back in to my life making me realize all my earthly struggles, painful experiences and disappointing failures. But now I stand proud of the mom and wife I have become and all my dreams I am fulfilling. I say all that to say, that I don't want Graci to have the child hood that I had. I don't want her to experience the things I did at such a early age; I don't want her to look back at her life and regret things that she has done. However, the sad thing is that she will face and have obstacles that I never had. Each year of her life will consist of surgery, new doctors, therapy and hospital stays. I know that this will only make her stronger. However, It is hurtful to know that she will look back at her childhood and have those types of experiences to share. I just want her to know that her family has always put her first and the joy that she has brought to our lives is unmeasurable. Graci, you brighten my day and warm my heart each day I am alive. You are full of beauty, forever beautiful and truly amazing. God made you exactly the way he wanted and placed you in our lives for a reason. You have brought so much sunshine in my life and each day you fill my heart with love. Ok, you can see that every time Graci has surgery it saddens me. My heart rejoices because it is just one step closer to the completion of this journey; but it never ends for Sweet Graci. I am so thankful that God has given me such a strong and determined little girl who NEVER lets anything or anyone stand in her way.
We arrived in California and was immediately hit with the cold chill in the air. However, the strong chilly wind moved my spirit and I was trembling with joy. I was so happy to be with my family, away from all the hustle and bustle back in Wilson and the stress at work. Well, the cold wind brought us closer and we all began to hold hands and walk together. It certainly brought back memories of of our first journey together. We got settled in our same little apartment that we had last time and enjoyed the evening together. After being up for over 24 hours and with little rest from a busy week we all crashed before 9:00. We woke up early to grab some breakfast and thank God for another day and headed off to the city before Graci's pre-op.
We decided to hit China town just to say we went. Well, it was the most hectic mess of confusion that I had ever seen in a city. People every where, cars pulling out of alleys, people begging, fruit markets on every corner, jewelry and pocket books galour. Graci and I did get us a couple of knock off pocketbooks while Thomas stood there holding Griffin looking like a tourist watching the people go by. We didn't stay too long, due to the lack of walking the children wanted to do so we headed to Pier 39. We had visited there before so we were all excited about looking at all the gorgeous attractions right on the San Fran Bay. We ate at the Bubba Gump Shrimp Restaurant and enjoyed the scenery and walked around for a bit. As Forest Gump said, Life is like a box of chocolates and you never know what you are going to get. That has certainly been a reality for us these past three months.
Off to the gorgeous city 0f Mountain View for Graci's pre-op which is about 40 minutes from San Fran. The city gets its name from the views of the Santa Cruz Mountains. Looking out at these mountain views makes you feel good all over. It is such a unbelievable picture that I can't even describe. We may not be able to conquer a mountain but we can conquer ourselves and that is exactly what Graci is doing. The dream of having two ears and we have kept her dream alive. We have achieved this dream from faith and the belief in God. Also from Graci's hard work, dedication and determination. Remember all things are possible for those who believe. At one point we didn't even know how to make this dream come true. Thanks to all of you her dream has come true and this journey will have a happy ending...............
The plane ride was just like any other plane ride, crowded with lots of smelly people. I enjoy my space too much and I have a issues with smells. There were people every where falling asleep with their mouths open and all these weird smells all around me. Anyway, Griffin watched movies and Graci kept herself busy playing and she even sat beside a Spanish girl and they colored and laughed together. It was really sweet watching two innocent girls who didn't even know laugh and smile together. One would giggle and then the other would giggle and their smiles were contagious. They had everyone around them smiling. In the meantime, I was actually able to relax and read a book. "A Flame on the Front Line" written by John Weaver, my dear brother. The book explores his aspects of life as a child, teenage and then discuss his journey from America to Afghanistan. He now shares God's love in Afghanistan and has been helping Afghans for over 25 years. If any of you are interested in learning more about this remarkable man, please consider purchasing a book from amazon. Anyway, this book got me thinking about my very own child hood. My child hood consisted of growing up with three older brothers and a younger sister who is now my best friend and the divorce of my parents. John's book took me back in to my life making me realize all my earthly struggles, painful experiences and disappointing failures. But now I stand proud of the mom and wife I have become and all my dreams I am fulfilling. I say all that to say, that I don't want Graci to have the child hood that I had. I don't want her to experience the things I did at such a early age; I don't want her to look back at her life and regret things that she has done. However, the sad thing is that she will face and have obstacles that I never had. Each year of her life will consist of surgery, new doctors, therapy and hospital stays. I know that this will only make her stronger. However, It is hurtful to know that she will look back at her childhood and have those types of experiences to share. I just want her to know that her family has always put her first and the joy that she has brought to our lives is unmeasurable. Graci, you brighten my day and warm my heart each day I am alive. You are full of beauty, forever beautiful and truly amazing. God made you exactly the way he wanted and placed you in our lives for a reason. You have brought so much sunshine in my life and each day you fill my heart with love. Ok, you can see that every time Graci has surgery it saddens me. My heart rejoices because it is just one step closer to the completion of this journey; but it never ends for Sweet Graci. I am so thankful that God has given me such a strong and determined little girl who NEVER lets anything or anyone stand in her way.
We arrived in California and was immediately hit with the cold chill in the air. However, the strong chilly wind moved my spirit and I was trembling with joy. I was so happy to be with my family, away from all the hustle and bustle back in Wilson and the stress at work. Well, the cold wind brought us closer and we all began to hold hands and walk together. It certainly brought back memories of of our first journey together. We got settled in our same little apartment that we had last time and enjoyed the evening together. After being up for over 24 hours and with little rest from a busy week we all crashed before 9:00. We woke up early to grab some breakfast and thank God for another day and headed off to the city before Graci's pre-op.
We decided to hit China town just to say we went. Well, it was the most hectic mess of confusion that I had ever seen in a city. People every where, cars pulling out of alleys, people begging, fruit markets on every corner, jewelry and pocket books galour. Graci and I did get us a couple of knock off pocketbooks while Thomas stood there holding Griffin looking like a tourist watching the people go by. We didn't stay too long, due to the lack of walking the children wanted to do so we headed to Pier 39. We had visited there before so we were all excited about looking at all the gorgeous attractions right on the San Fran Bay. We ate at the Bubba Gump Shrimp Restaurant and enjoyed the scenery and walked around for a bit. As Forest Gump said, Life is like a box of chocolates and you never know what you are going to get. That has certainly been a reality for us these past three months.
Off to the gorgeous city 0f Mountain View for Graci's pre-op which is about 40 minutes from San Fran. The city gets its name from the views of the Santa Cruz Mountains. Looking out at these mountain views makes you feel good all over. It is such a unbelievable picture that I can't even describe. We may not be able to conquer a mountain but we can conquer ourselves and that is exactly what Graci is doing. The dream of having two ears and we have kept her dream alive. We have achieved this dream from faith and the belief in God. Also from Graci's hard work, dedication and determination. Remember all things are possible for those who believe. At one point we didn't even know how to make this dream come true. Thanks to all of you her dream has come true and this journey will have a happy ending...............
Sunday, September 27, 2009
September's Super Fundraisers
Today has been a very emotional day for me. I guess it started at 12 am when I laid my head down for bed and I began to pray. I immediate started to cry because I have never ever felt like this before. It's so overwhelming for me and I don't know what else to do but cry. I began to thank God for my family, friends and everyone who doesn't even know my family but yet cares so much. I was pouring my heart out to God asking him why "us". Why do we deserve all this when there is so many people who need help. Well needless to say, I feel asleep because I woke up and looked at the clock and it was 7am. I woke up to most precious sight ever and that was two small children lying next to me. I must have been so tired that I didn't even know they had gotten in the bed with us. Graci was all snuggled up to her Daddy and Griffin was whispering in my ear, "Mommy, Rub my back". My eyes watered up and I begin to thank God again for two amazing children and wonderful husband who have made me the person I am today.
September started out with Chicken :) A dear friend of mine contacted Chick-fil-a about doing a fundraiser for Graci and they agreed. The date was picked and it just happen to be on our 10th Year Anniversary so I knew that it would be a special day and one to remember forever. It started bright and early in the morning, 6am to be exact, and people were rolling in for breakfast and the drive thru line was backing up. Lunch came and people were ordering chicken sandwiches faster than they could make them. The volunteers (who were dear friends of Thomas and I) were busying filling drinks, wiping tables and checking on the cow. Yes that reminds me that Chick-fil-a has its very own cow. Well he was quite entertaining out in the street catching peoples eyes and trying to get them in to support a great cause. Dinner came in like a dynamite and business was booming. Kids were having fun in the playroom until MiMi the clown came in with her bright colorful balloons and vivid paint images. MiMi spent over 3 hours painting kids faces so spectacular that it was eye shadowing. Tables were filling up and the noise was flowing throughout the restaurant. The atmosphere was wonderful. Graci had a great time in her cow outfit prancing around talking to the customers. The night ended with alot of tired people but the generosity that was shown for such an amazing little girl was breath taken. Thank you to all our friends who helped organized and plan this event and thanks to Chick-fil-a for helping make Graci's dream come true!!!
Also that same day, my employer, Wilson County Health Department, hosted a "Dress Down For Graci Day". Every employee interested paid $5.00 to dress down for the entire day. They also had a bake sale with scrumptious desserts from chocolate pie, brownies, cupcakes, key lime and even one of the employees famous Caramel cake. Many of the staff visited the Bake Sale through out the day, buying their favorite dessert and munching on them all day. It really brought tears to my eyes knowing that my own co-workers care so much. It is important to know that I can come to work and be around such a group of caring individuals. Many of them I see more than I do my own family. It reminds me of a Winston Churchill quote that "We make a living by what we get, but we make a life by what we give." I hope one day my family will be able to give back to the community what they have done for us. I am so thankful and fortunate to work with such a giving group and I thank the Health Director and the staff at Wilson County Health Department for supporting my family and helping Graci with her journey.
Words can't describe what a wonderful weekend this was for The Brown Family! Friday started out with "An Ear For Graci" Golf Tournament. The committee for this fundraiser has been working so hard and so deli gently on this project that they were addicted to making this happen. We will NEVER be able to thank everyone who was apart of this because the response was just that remarkable. We had over 41 golf teams and over 35 Sponsors who came together to help Graci with her Ear. The morning started early with volunteers putting up sponsor signs and getting ready to sign the golfers in, selling raffle tickets and selling for the 50/50 raffle. I couldn't have been more amazed by the organization of this event and the Wells family needs to be committed immensely for their hard work. As Mark Fulford said, "What an amazing day, I had a great time being apart of such a great cause." Thanks to Mark as well for is eagerness to make this happen. However, the rain clouds and the chilly air set in and it poured for about an hour; but it didn't stop those golfers from trying to win. It ended in the afternoon with many tired, wet but still smiling golfers. Graci was waiting at the clubhouse for them and giving them high fives as they came in. Winners were announced, door prizes were given out and the 50/50 winner donated his money back to Graci. The day was a dynamite and it raised over $15,000. It will be an annual event and dates and place are already being discussed for the next year. Graci's Golfers sure knew how to make her feel like a real pro that day!!
Graci's Journey to Her Ear doesn't end there. Rib Hut a local business in Wilson, NC who is famous for their ribs and famous John Boy and Billy Sause wanted also to be apart of a great cause. With every $25 gift card purchased for the next two months $5 would go towards Graci's Medical Fund. Many people were going online to purchase and visiting the restaurant for gift cards. Michelle Lewis, owner of the Rib Hut wanted to end the fundraiser with a Benefit Concert. Easy Street, the greateast and most sought after band in Wilson graciously agreed to play to wind up the fundraiser. It was a great night with my family and Graci's Biggest Fan's coming out to support her. People were coming out ot eat good food, drink cold beverages and listen to good music. Easy Street brought tears to my eyes when they played "Graci's Song" and remindedThomas and I over and over again while playing "Alright" by Darris Rucker that "we have all we've ever wanted and that everything will be alright." Every time I hear this band it just makes me realize that nothing in life is to be feared, it is only to be understood. Easy Street, Rib Hut and staff made it a great night and Graci enjoyed it so much! She is turning into a little Country Music Girl and ready to learn to play the Guitar.
Pretty, Pretty Princess!!!!! Playdate a drop in childcare center in Wilson, NC just adores my children. I have been dropping them off every since they opened their doors. In fact, we were probably one of their first costumers. Graci and Griffin are their biggest Fans and Angie and her staff have always been so welcoming and loving towards all the kids that come. They too wanted to to be apart of the community reaching out to help Graci. The week started with a basket raffle. Baskets and Gift Certificates were donated by various Wilson Businesses and individuals and people came in all week to buy tickets and placed them by the basket they wanted to win. Many baskets included make-up, jewelry, hair products, scrap booking, massages, gift certificates, pottery, art work and much much more. It was so excited brownsing all the baskets and picking which one you wanted to win.
Sunday ended the weekend with Graci's very own Princess Party. You could drop off your royalty for some true princess pampering for two hours and your little one would sure be treated like a queen. Graci being the most gorgeous Princess of them all had a glamours time. It was just a sweet event to watch girls prancing around in heels, glitter, pearls and crowns. Thank you so much Angie, Mike and the Playdate staff for making Graci feel like a true princess and helping her with her journey. We just love you from the bottom of our hearts. I want to end with a quote from Brian Andreas, "Are you a princess I said and she said I'm much more than a princess, but you don't have a name for it yet on Earth....."
Sunday, August 30, 2009
Graci's Song
Song Written by Easy Street
Oh (Hello) Graci
How you amaze me
The pain from before
will soon be no more
Oh Graci.
They'd always wanted children
A family they could raise.
She woke him up and kissed him.
Their dreams cane true that day.
They painted her room together
And talked about a name.
And all their friends would tell them
Life would never be the same.
The pictures they were seeing
were proof of life inside.
Dad asked, "How is my baby?'
She said, "The doctor's will decide."
There would be complications;
Jubilation turned to worry
with the doctor's every word.
The look she gave to Thomas
said, Our Graci is on her way."
The doctors there were waiting
to hold a miracle that day.
Worried anticipation
turned to joyful tears
As Graci made her presence
Among the claps and cheers.
Graci, your smile shines brighter
than the pain that you've been through
And you spirit is contagious
I wish the world was more like you.
Oh Graci
How you amaze me
The pain from before
will soon be no more.
Oh Graci.
Oh (Hello) Graci
How you amaze me
The pain from before
will soon be no more
Oh Graci.
They'd always wanted children
A family they could raise.
She woke him up and kissed him.
Their dreams cane true that day.
They painted her room together
And talked about a name.
And all their friends would tell them
Life would never be the same.
The pictures they were seeing
were proof of life inside.
Dad asked, "How is my baby?'
She said, "The doctor's will decide."
There would be complications;
Jubilation turned to worry
with the doctor's every word.
The look she gave to Thomas
said, Our Graci is on her way."
The doctors there were waiting
to hold a miracle that day.
Worried anticipation
turned to joyful tears
As Graci made her presence
Among the claps and cheers.
Graci, your smile shines brighter
than the pain that you've been through
And you spirit is contagious
I wish the world was more like you.
Oh Graci
How you amaze me
The pain from before
will soon be no more.
Oh Graci.
First Fundraiser and it was Fabulous!
I never knew my little girl would bring in such a crowd. Wow, is all I can say about the first fundraiser of the kick off to "An Ear for Graci". That has become our motto. Every since the article it has been remarkable the people that have stepped up and offered to help with fundraising. So for the past two months many people have been planning, advertising and working really hard to raise money for "Graci Brown". I can honestly say that this fundraiser was such an honor to be apart of; and we were so thankful that our daughter was even thought of.
Wilson's Got Talent.....Five local bands were competing for the title of Wilson's Best Local Band and it worked by people donating to their favorite charity. Each band had picked a charity and Easy Street had chosen "Graci's Medical Fund". All bands played all week at various restaurants and people contributed all week either on site or online. On Saturday night all five bands played in the big tent at the Shoppes at Brentwood. It was a big success and all bands jammed throughout the night while people ate, drank and danced the night away.
On Friday night the members of Easy Street, Matt, Jay, Mike and Chris rocked it out at the Doghouse Sports Grill. It was amazing the crowd that came out to support us. I never knew the love from others and how it would feel until that night. I believe you must love people and they will love you back. I have to thank my wonderful mother, who wasn't able to make it, for raising me to be who I am today, and for always telling me to treat people with respect, to refrain from disputes and to make lasting friendships. Because there is one thing for certain that there was love in the air; love for a little girl on a mission to her journey to her ear. There was laughter, joy, tears and hugs throughout the entire night. Nothing has ever given me more joy and reward than being a mother to Graci. I am so proud of her; all this has to be so overwhelming; but she will look back on this journey and realize that everyone was with her all along the way.
Needless to say, Easy Street won the Battle of the Bands and Graci was given a check my Easy Street to help with her medical expeses. The only regret I have about the night was that Graci wasn't there to here everyone chant her name win they announced the winner :) However, it was 1:00 in the morning and a girl has to have her beauty sleep but what a feeling when I was standing up on stage speechless with makeup running down my face and hearing everyone say, Graci, Graci, Graci. It re mined me of Matt singing the song, "Alright" and looking me and Thomas in the eye telling us that everything was going to be Alright. I will never forget that moment and when I am feeling down and blue that will pick me up forever.
I will NEVER know or be able to thank everyone individually but you know who you are. Please take this time to give yourself a hug, wipe your tears and know that we all will walk in victory because you have helped make this Dream come True for Graci. May the Grace of God protect you and be with you while we are away from each other. I had always believed this dream would come true and now I know that it WILL. Somewhere over the rainbow, where skies are blue dreams do come true.
Thank you Easy Street, Dog house Sports Grill, Wilson Business Alliance and family and friends for a wonderful fundraiser for Graci Brown. It was a success and you all should be so proud!! God Bless Each and Everyone of you.
Wilson's Got Talent.....Five local bands were competing for the title of Wilson's Best Local Band and it worked by people donating to their favorite charity. Each band had picked a charity and Easy Street had chosen "Graci's Medical Fund". All bands played all week at various restaurants and people contributed all week either on site or online. On Saturday night all five bands played in the big tent at the Shoppes at Brentwood. It was a big success and all bands jammed throughout the night while people ate, drank and danced the night away.
On Friday night the members of Easy Street, Matt, Jay, Mike and Chris rocked it out at the Doghouse Sports Grill. It was amazing the crowd that came out to support us. I never knew the love from others and how it would feel until that night. I believe you must love people and they will love you back. I have to thank my wonderful mother, who wasn't able to make it, for raising me to be who I am today, and for always telling me to treat people with respect, to refrain from disputes and to make lasting friendships. Because there is one thing for certain that there was love in the air; love for a little girl on a mission to her journey to her ear. There was laughter, joy, tears and hugs throughout the entire night. Nothing has ever given me more joy and reward than being a mother to Graci. I am so proud of her; all this has to be so overwhelming; but she will look back on this journey and realize that everyone was with her all along the way.
Needless to say, Easy Street won the Battle of the Bands and Graci was given a check my Easy Street to help with her medical expeses. The only regret I have about the night was that Graci wasn't there to here everyone chant her name win they announced the winner :) However, it was 1:00 in the morning and a girl has to have her beauty sleep but what a feeling when I was standing up on stage speechless with makeup running down my face and hearing everyone say, Graci, Graci, Graci. It re mined me of Matt singing the song, "Alright" and looking me and Thomas in the eye telling us that everything was going to be Alright. I will never forget that moment and when I am feeling down and blue that will pick me up forever.
I will NEVER know or be able to thank everyone individually but you know who you are. Please take this time to give yourself a hug, wipe your tears and know that we all will walk in victory because you have helped make this Dream come True for Graci. May the Grace of God protect you and be with you while we are away from each other. I had always believed this dream would come true and now I know that it WILL. Somewhere over the rainbow, where skies are blue dreams do come true.
Thank you Easy Street, Dog house Sports Grill, Wilson Business Alliance and family and friends for a wonderful fundraiser for Graci Brown. It was a success and you all should be so proud!! God Bless Each and Everyone of you.
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An Ear For Graci
Graci's Song
